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York Hull Adult CF Centre

@yorkhullcf

Specialist Cystic Fibrosis centre covering the York and Hull region. Enthusiastic about excellent local care.
Yorkshire and The Humber yorkhullcf.org.uk Joined October 2018
300 Following 397 Followers 615 Posts

Latest posts 5

York Hull Adult CF Centre @yorkhullcf
In relation to the below post re Creon supply shortages. Please contact your CF team if you are afected by the situation, or you need any help or advice.
Tel 01904 725601- York

01482 622495- Hull

Text 07816 330 902- York

07471 978 990- Hull
Cystic Fibrosis Trust @cftrust Aug 20, 2024
While we continue to push for short and long term solutions to the ongoing problems with supply of PERT (Creon), given the huge impact this is having on your lives we wanted to make sure you know how we can help. (1/4)
How we can help if you are struggling to access Creon: - we can give you support to discuss adjustments at work or in education to help when managing difficult symptoms - we can help with financial support if you’re struggling with extra costs travelling to hospitals, pharmacies or taking time off work - we can make sure you've got the most up to date information
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York Hull Adult CF Centre @yorkhullcf
NICE approve permanent access to life changing cystic fibrosis drugs

cysticfibrosis.org.uk/news/nice-appr…
www.cysticfibrosis.org.uk NICE approve permanent access to life changing cystic fibrosis drugs The National Institute for Health and Care Excellence (NICE) have today (20 June) given approval for the life changing cystic fibrosis (CF) modulator drugs – Kaftrio, Symkevi and Orkambi - to be made...