Steve Jones

@ActionPFsteve

Trustee of @ActionPFcharity, a patient organisation committed to supporting people living with pulmonary fibrosis. Board member of @EU_IPFF

United Kingdom actionpulmonaryfibrosis.org Joined October 2017

356 Following 1.6K Followers 953 Posts

Latest posts 5

Steve Jones @ActionPFsteve Dec 31, 2024

Quietly remembering over 8,000 people who died of pulmonary fibrosis in 2024, including DJ Johnnie Walker, Indian musician Zakir Hussain and patient advocate Maggie Bartlett. As the year comes to an end, our thoughts are with them and their families. @ActionPFcharity #StopPF

Steve Jones @ActionPFsteve Oct 7, 2024

Same here - sorry not to be there - have a great meeting !

Katleen Leceuvre @KLeceuvre Oct 6, 2024

@ild_inn @neen865 @EdgbastonPark Sorry I cannot be there. Enjoy the days,
Thinking of you 😊
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Steve Jones @ActionPFsteve Oct 7, 2024

Organ donors save lives

ILFA Ireland @ILFA_Ireland Oct 5, 2024

Today is #EuropeanDonationDay #OrganDonorsSaveLives
Please have a conversation with your loved ones and let them know your wishes on organ donation.
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Steve Jones @ActionPFsteve Aug 1, 2024

C’mon BA. First you delay our flight yesterday from Corfu from 1440 to 1900. Then the captain says he has run out of hours and we have to find hotels for the night with a new dep at 0930 today. Now you have delayed further to 12.45. What a joke! @British_Airways @SimonCalder

Steve Jones @ActionPFsteve Jul 23, 2024

My 4-year term as President of @EU_IPFF ‘the Voice of Pulmonary Fibrosis Patients in Europe’ finished today. It’s been great working with amazing colleagues and partners and I am pleased to warmly welcome John Solheim (Norway) as the new President of EU-PFF. Over to you, John!