Addison's Disease Self-Help Group (ADSHG)

@AddisonsUK

The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA

UK & Ireland addisonsdisease.org.uk Joined February 2015

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Addison's Disease Self-Help Group (ADSHG) @AddisonsUK Oct 19

People with adrenal insufficiency deserve safer adrenal crisis care.

Adrenal crisis is a life-threatening emergency that needs a time-critical injection of hydrocortisone. Other life-threatening conditions have auto-injectors or pre-filled syringes. Adrenal crisis doesn’t. (1/3)

Graphic from the Addison’s Disease Self-Help Group (ADSHG) with the headline “Campaigning for Safer Adrenal Crisis Care” in bold red text.

Above this is a red button labelled “Patient Safety Risk.”

Supporting text explains that an adrenal crisis is a life-threatening medical emergency requiring a time-critical injection of hydrocortisone.

A large grey panel contains a red warning heading: “Other life-threatening conditions have auto-injectors or pre-filled syringes. Adrenal crisis doesn’t.”

Additional text explains that the hydrocortisone injection process is complex and involves multiple steps, leaving patients struggling to self-inject life-saving treatment.

It also states that patients’ lives are at risk and hospital admissions are increased because of delayed treatment.

Below the text is a red circular illustration showing a syringe, vial and ampoule, with warning symbols.

The purple footer contains the call to action “Help us campaign for change” followed by a white arrow.

Addison's Disease Self-Help Group (ADSHG) @AddisonsUK 4d

⏰ It's time to book your #FluJab! This NHS vaccine is free for people living with steroid dependency (Addison's and adrenal insufficiency).

This is the best way to protect you, reduce your risk of becoming unwell and triggering an adrenal crisis ⤵️
addisonsdisease.org.uk/lifestyle-and-…

www.addisonsdisease.org.uk Vaccinations

Addison's Disease Self-Help Group (ADSHG) @AddisonsUK 6d

💬 "I want to help my friend get the best, quickest and safest care. All Addison's sufferers and their families and friends deserve the same."

Thank you to those who have shown their support for our Safer Adrenal Crisis Care campaign. This #MedSafetyWeek, join them! (1/2)

Addison's Disease Self-Help Group (ADSHG) @AddisonsUK Oct 29

Hello from #RCGPAC2026!👋

Adrenal insufficiency is easy to miss & dangerous when mismanaged. Our new campaign, ‘Spot. Stabilise. Support.’ helps GPs act early & confidently.

🆕 Visit our stand to pick up a FREE GP resource folder
📍 Stand D70, back left-hand corner of hall four

The Addison’s Self-Help Group stand at the RCGP Annual Conference, with a green fascia sign above.

On the left, four stacked cubes read “Spot”, “Stabilise” and “Support” in purple and teal, with the top of “Stabilise” listing time-critical steroids, Sick Day Rules and adrenal crisis treatment. The bottom cube asks “Can we count on you?” and shows the hashtag #SpotStabiliseSupport.

On the right, a table with a purple and blue cloth displaying www.addisons.org.uk holds piles of leaflets and resource folders. Purple, blue and white bunting hangs overhead.

Addison's Disease Self-Help Group (ADSHG) @AddisonsUK Oct 27

Have you written to your MP about #SaferAdrenalCrisisCare? Thank you!

Now show the faces behind our campaign. Print our pledge poster, snap a photo holding it, submit it & tag us!

✏️ Write. 📸 Share. 🚨 Make change happen.

Get involved➡️ loom.ly/Ew-D6CY