Andrew L Callen MD

After getting some great feedback from patients using Upright, I’ve just released an update with some improvements and new features:

• Appointment preparation: put your story into words, prioritize your questions, and bring a printable brief to your visit

• Upright/flat tracking: record total daily upright time

• Updated PDF reports: see symptom trends over time alongside treatments and position tracking

• Easier medication logging: reuse previous medications and enter doses from earlier dates

The appointment feature grew out of conversations in clinic. People often arrive with a lot they want to ask and understandable worry about whether they’ll be heard. My hope is that this helps you bring what matters most into the conversation.

Thank you to everyone who’s tried the app and shared feedback.

Download Upright for free on the App Store:

apps.apple.com/us/app/upright…

Several patients have asked whether this new “Neuro-EDS” paper explains their illness that I wanted to share my assessment.

I rarely write threads like this. But patients deserve to know what an explanation establishes before it shapes their care.

A spinal CSF leak perspective: 🧵

preprints.org/manuscript/202…

This conference gets better each year, and I am particularly excited to hear from our amazing lineup of patient and provider speakers this Fall. Register today!

Should one negative myelogram end the search for a CSF-venous fistula?

Our @TheAJNR study found positive studies occuring in ~1 in 10 patients with suspected SIH after a prior negative myelogram .

Not a mandate; evidence for shared decisions. #SIH

ajnr.org/content/early/…

Hard to put into words what this means.

A $50M gift to help us transform care for patients with CSF leaks.

I’m incredibly grateful, humbled by the trust, and feel an enormous responsibility to make sure this changes what is possible for these patients.

A remarkable day. And really, just the beginning.

news.cuanschutz.edu/news-stories/c…