Cystic Fibrosis Registry of Ireland

@CFRegistryIE

Official CFRI twitter. The patient registry for people with cystic fibrosis in Ireland. Retweets not an endorsement. Seek the advice of your physician.

Woodview House, UCD cfri.ie Joined July 2019

141 Following 200 Followers 223 Posts

Latest posts 5

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Cystic Fibrosis Registry of Ireland @CFRegistryIE Oct 20, 2023

CFRI are delighted to launch our report celebrating 20+yrs of collecting data on people with CF in Ireland.

It covers key longitudinal data trends, the journey of CFRI and reflections on the future.

Please do have a read & share amongst colleagues! cfri.ie/publications/

Cystic Fibrosis Registry of Ireland @CFRegistryIE Dec 8, 2023

Team @CFRegistryIE supporting @cf_ireland Christmas Jumper Day #CJD4CF2023 both remotely & in-person!

Cystic Fibrosis Registry of Ireland @CFRegistryIE Dec 8, 2023

Team @CFRegistryIE look forward to joining in #CJD4CF during our virtual afternoon coffee break later - photos to follow!

CF Ireland @cf_ireland Dec 8, 2023

Today's CJD4CF!
If you did not get a chance to organise a fundraiser today, you can still donate by texting ‘FIGHT CF’ to 50300 to donate €4
[Text cost €4. Cystic Fibrosis Ireland will receive a minimum of €3.60. Service Provider: LIKECHARITY. Helpline: 014819311]
#CJD4CF2023

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Cystic Fibrosis Registry of Ireland @CFRegistryIE Dec 8, 2023

❓ Did you know ❓

You can read & download all our annual reports & publications online.

Annual reports: lnkd.in/eskgweJH
Publications: lnkd.in/ePyskirY

Want to learn more about what we do? Get in touch via 📧 - details on our website.

#CysticFibrosis #Registry

lnkd.in LinkedIn This link will take you to a page that’s not on LinkedIn

Cystic Fibrosis Registry of Ireland @CFRegistryIE Dec 5, 2023

Laura, our Head of Research, is a volunteer leader with the Brownies and Guides in Tullow. On Friday they got on their Christmas jumpers for CF and had a carol service, raising funds for @CF_Ireland #CJD4CF2023