CDCN

@CureCastleman

Castleman Disease Collaborative Network: turning promising research into permanent cures. Donate today at cdcn.org/donate-here

CDCN.org Joined July 2014

292 Following 1.3K Followers 909 Posts

Latest posts 5

CDCN @CureCastleman Sep 10, 2024

The new @WHO Classification of Haematolymphoid Tumours includes a section on Castleman disease for the first time ever thanks to the CDCN SAB's Amy Chadburn, David Fajgenbaum, and Megan Lim!

Explore this resource on diagnosing and treating CD here: tumourclassification.iarc.who.int

CDCN @CureCastleman Jul 26, 2024

I’m going to have an identity crisis!

Should I be the LeCount Disease Collaborative Network?!

David Fajgenbaum, MD Verified account @DavidFajgenbaum Jul 26, 2024

…but a recent paper came out indicating that Dr. Edwin LeCount may have actually first described it in 1899! Should it be called LeCount’s disease?!?

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CDCN @CureCastleman May 6, 2024

We love #drugrepurposing for #castleman disease, but this is our favorite one…

David Fajgenbaum, MD Verified account @DavidFajgenbaum May 6, 2024

Really exciting to see this study reporting the effectiveness of sirolimus in a large cohort of idiopathic multicentric castleman disease patient!

link.springer.com/article/10.100…

I discovered sirolimus could be a treatment for iMCD in 2014 and began testing it on myself…
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CDCN @CureCastleman Apr 11, 2024

In this study, researchers at the Center for Cytokine Storm Treatment & Laboratory (CSTL) at Penn shed light on the burden faced by patients with idiopathic multicentric Castleman disease (IMCD) at diagnosis and long-term. haematologica.org/article/view/h…

CDCN @CureCastleman Apr 2, 2024

Researchers at the Cytokine Storm Treatment & Laboratory (CSTL) share insights into idiopathic multicentric Castleman disease (iMCD) and its subtypes that could potentially lead to patients benefiting from more personalized, tailored treatments. onlinelibrary.wiley.com/doi/10.1111/bj…

onlinelibrary.wiley.com Immune‐mediated thrombocytopenia and IL‐6‐mediated thrombocytosis observed in idiopathic multicen... Idiopathic multicentric Castleman disease (iMCD) is a haematological illness that presents with a wide range of clinical characteristics and is subdivided into three subtypes: thrombocytopenia,...