FA Research Alliance

@CureFA_org

FARA's mission is to marshal and focus the resources and relationships needed to treat & cure Friedreich's ataxia (FA). #CureFA

Downingtown, PA curefa.org Joined June 2011

587 Following 2.5K Followers 3.8K Posts

Latest posts 5

FA Research Alliance @CureFA_org Mar 14, 2025

The CR likely to pass today will slash more medical research funding. This action, combined with the cuts to the NIH, weakens research infrastructure and delays patient treatments. Continue to let your members know what medical research means to your family.

John M. Donnelly Verified account @johnmdonnelly Mar 13, 2025

BREAKING: The federal funding bill that is apparently close to becoming law would slash more than $1 billion from DoD health research, including cutting in half the money for a program that experts tell me has produced life-saving treatments.
rollcall.com/2025/03/13/fea…
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FA Research Alliance @CureFA_org Feb 14, 2025

Letters of intent for research funding are due February 15. Learn more about FARA's research priorities to advance understanding of #FriedreichAtaxia. Apply at ow.ly/cxfz50UZ3LA.

FA Research Alliance @CureFA_org Feb 13, 2025

Don't miss the deadline to apply for research funding!
Letters of intent are due on February 15.
Apply today at ow.ly/NbaV50UZ3BS.

#FARAGrantProgram #ResearchFunding #FriedreichAtaxia #Neuroscience #Cardiac #DrugDiscovery

FA Research Alliance @CureFA_org Feb 13, 2025

Help advance #FriedreichAtaxia research. Apply for funding from FARA. Letters of intent are due February 15. Learn more about the grant program's awards and priorities at: ow.ly/L3VM50UZ3sy

FA Research Alliance @CureFA_org Nov 15, 2024

In a press release this week, Lexeo Therapeutics reported that they have completed enrollment of LX2006 SUNRISE-FA Phase 1/2 trial and reached alignment with FDA on an accelerated approval pathway.

Click here to read the full press release: buff.ly/4fr91fX