DSRF_UK

We go over new #DownSyndrome #SleepApnea paper from @unisouthampton on the blog
dsrf-uk.org/new-research-t…

As Down's syndrome awareness month comes to an end, it's an excellent time to watch our explainer video 'Why Research Matters for Down's Syndrome' - and we'd be grateful if you could help us spread the word by passing this video on to others!

youtu.be/dw4X7WPWl0U

Families matter – from pregnancy and diagnosis, across life, until end of life.

Key Messages: “Families often feel confused and discouraged when care is poorly coordinated or when families & health professionals do not work together. Health care can be done better by listening

The transition into adult care – what can go wrong, and solutions.

“Failure to implement high-quality, timely, structured transition planning results in gaps in continuity, contributing to poorer health outcomes, including the development of multimorbidity & increased rates of

Care does not always meet needs – why this happens.

“…people with Down syndrome face wide-ranging barriers in accessing or receiving quality health care, including poor coordination of care, insufficient clinician knowledge of Down syndrome-specific health needs, and financial