ERDERA

Living with a #RareDisease can pose many challenges. A long wait from symptoms to diagnosis and limited or no appropriate treatment options are common for individuals with rare diseases. #ERDERA is dedicated to changing this 👉 Vist our website for more: loom.ly/HBCgxQo

Celebrate the people and initiatives making a difference in rare diseases. Join the 16th #EURORDIS Black Pearl Awards on 15 February 2027, held in Brussels & online as part of #RareDiseaseDay celebrations.
🎥 Online participation is free👉 loom.ly/ClRoNdc
#RareDiseases

👉 What does #HorizonEurope 2026–2027 offer the #RareDisease research community? Explore new funding opportunities and what they could mean for the field🔗 loom.ly/R_3G8Kw

#RareDiseases #HorizonEurope #ResearchFunding #HealthResearch

🎯 Shaping the new era of rare disease research.
Three days. Six session themes. One #REACTCongress bringing the #RareDisease community together to explore the research and challenges shaping what comes next.
📆 10–12 March 2027 | Budapest
🔗 Register: loom.ly/_fGiC04

📍Yesterday, ERDERA Coordinator Daria Julkowska joined @parlimagevents Health Summit to discuss #RareDiseases as an EU health priority. The message was clear👉 European ambition must be matched by Member States turning shared goals into national action. #EUHealth #PMhealth