HAE International (HAEi)

@HAEDAY

HAEi is the global umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups. We are dedicated to improving the lives of people with HAE.

Global haei.org Joined June 2011

203 Following 1.1K Followers 8.2K Posts

Latest posts 5

HAE International (HAEi) @HAEDAY 3d

Deadline extension for abstract submission- 2027 HAEi Regional Conference APAC!
We’ve had a great response, but heard a few would appreciate extra time. We offer a short extension: new deadline is Friday 20 November 2026, 11 pm CET.
More info & guidelines: buff.ly/kAwyc2n

HAE International (HAEi) @HAEDAY Nov 2

Living with HAE as a young person can come with unique challenges. The HAEi Youngsters’ Community brings together those aged 12–25 worldwide to connect, share experiences, learn about HAE, build friendships, & inspire the next generation of HAE advocates: buff.ly/1wLMCke

HAE International (HAEi) @HAEDAY Oct 31

Halloween should be spooky. Living with HAE shouldn't have to be.
HAEi believes no one should have to face HAE alone. Via education, shared experiences & a supportive global community, we can make living with HAE a little less scary: haei.org
Happy Halloween 🎃👻

HAE International (HAEi) @HAEDAY Oct 30

Registration for the 2027 HAEi Regional Conference APAC is now open. We have already notified people who applied for a travel grant by email. If you applied and didn’t receive the email, check your spam folder. More details on our conference website: buff.ly/bRzqLTH

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HAE International (HAEi) @HAEDAY Oct 28

A series of HAEi Advocacy Research and HAEi Targeted Research projects are ongoing to help change this by bridging the gap between international ambition for the goals of HAE management and practical action at the national level: buff.ly/6oOe77u