HDYO

We were so grateful to the FDA for bringing the collective #HuntingtonsDisease voice to this roundtable discussion. Thank you!

Beth Borowsky from Novartis joins HDYO to share more details about INVEST-HD. Bc this trial is looking at people earlier in their disease progression, some symptoms may not be detectable in day to day life but could be measured by clinicians. We dive deep into that conversation.

Inspired by the advocates, families and community members, five Huntington’s disease organizations came together today to champion the future of rare disease innovation at the FDA. 

Together, we look forward to strengthening our partnership with the FDA.

Today is Huntington’s Disease Awareness Day! We are celebrating through the faces, past and present, of HDYO over the years. The impacts of HD on young people still needs to be acknowledged, understood and listened to. We are proud to champion those voices.

#huntingtonsdisease

Meet Banaz, an inspiring ambassador for HDYO from the Kurdistan region in Iraq! She's bravely sharing her journey with Huntington's Disease and making a difference in the Middle East. #whatishappening #huntingtonsdisease #hope #impact