Our research coordinator Laura highlights the importance of taking part in research in this article by @ResearchWales on #RareDiseaseDay and how being part of research can improve the lives of people going forward #TuberousSclerosis #RareDiseases
When Trystan James was diagnosed with the #raredisease tuberous sclerosis at 8 months old there was very little information on the condition and no treatments.
On #RareDiseaseDay read his mum Marie’s story of hope through research 👇
healthandcareresearchwales.org/about/news/we-…View quoted post on X
