International League Against Epilepsy

@IlaeWeb

A preeminent association of healthcare professionals & scientists working toward a world where no person's life is limited by epilepsy. RTs are not endorsements

ilae.org Joined June 2012

609 Following 12K Followers 9.4K Posts

Latest posts 5

International League Against Epilepsy @IlaeWeb 2h

Inscrivez-vous au webinaire DEMAIN ! Nous vous invitons à un webinaire éducatif en français sur la « Optimisation de l’EEG dans l’épilepsie de l’enfant » le 10 novembre à 17h UTC : ilae.org/webinar/10nov26

#epilepsy #brainhealth #neurology #epilepsywebinar

International League Against Epilepsy @IlaeWeb 6h

Key point: "Retrospective identification of LGS using EHR data is challenging due to nonspecific terminology, incomplete medical records, and inconsistent documentation."

Read this full-access research article from @EpilepsiaJourn at doi.org/10.1002/epi.70….

"Validating LGS diagnoses using EHR data is complex and resource intensive. Standardized terminology, structured documentation, and rigorous multicenter validation may improve diagnostic accuracy, research cohort identification, computable phenotype development, and longitudinal care for individuals with LGS. Our results highlight important operational lessons for multicenter rare epilepsy studies and underscore the need for improved diagnosis pathways and longitudinal care systems for those with LGS and their families."

Read this full-access research article from Epilepsia Journal at doi.org/10.1002/epi.70551.

#epilepsy #brainhealth #neurology #epilepsyresearch #neuroscience

International League Against Epilepsy @IlaeWeb 10h

Rima Nabbout, who oversees the ILAE-Europe Webinar Series alongside Maša Malenica, shares the vision behind the region’s new webinar programme.

Join her and other regional leaders on 13 November for a session on Genetic Testing Across the Lifespan: ilae.org/webinar/13nov26

1:20

International League Against Epilepsy @IlaeWeb 1d

Register for the Caribbean Nurses Epilepsy Web Conference on patient education and counseling: ilae.org/webinar/15nov26

Nurses will learn general skills on counseling patients, families, and caregivers about #SUDEP, being a woman living with #epilepsy, seizure logs, and more.

Join us next week for the Caribbean Nurses Epilepsy Web Conference on patient education and counseling!

During the 15 November web conference, nurses will learn general skills on counseling patients, families, and caregivers about #SUDEP, being a woman living with #epilepsy, common psychiatric comorbidities of epilepsy, seizure logs, and treatment adherence. Register at www.ilae.org/webinar/15nov26

International League Against Epilepsy @IlaeWeb 1d

The latest ILAE e-Forum was an excellent educational opportunity for participants. Of those who completed the post-session survey, 100% said they gained a great deal or moderate amount of new knowledge.

This session is available on demand at ilae.org/eforum/2026-3.

The ILAE e-Forum: Genomics – when, why and how? was an excellent educational opportunity for participants. Of those who completed the post-session survey, 100% said they gained a great deal or moderate amount of new knowledge from the e-Forum.

Did you miss this session? It is now available on demand for all to view at www.ilae.org/eforum/2026-3.

#epilepsywebinar #epilepsy #genomics #brainhealth #neurology