A huge thank you to our amazing speakers. We have covered so much ground on a wide range of topics. The day ended with a powerful message of hope from Colbie-Kate urging everyone to be open and work together. We have set the scene for the future.
Little Hearts Matter
@LHM_UK
The only UK charity with dedicated support for people affected by a single ventricle heart condition ❤️🧩
#chdawareness #hiddendisabilities #organdonation
#chdawareness #hiddendisabilities #organdonation
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A discussion about the Fontan Clinic was led by Dr Paul Clift where he discusses concerns surrounding the different outcomes for single ventricle patients who undergo through the Fontan pathway, how Fontan clinics should be run and what will help the patients in longer term.
Dr Jo Wray spoke about the importance of ICHPs and ECHPs for patients to make sure school days are some of the best days for young people with single ventricle conditions. To know more information about our medical conference, please look at our link lhm.org.uk/information-on…
The voice of young adults is at the centre of our medical symposium today.
Thank you to Dillon, 20 yrs , Andrew, 29 yrs and Colbie-Kate, 22 yrs for sharing the impact of living with half a functioning heart and how it affects their life.
#lhm #medicalconference
Thank you to Dillon, 20 yrs , Andrew, 29 yrs and Colbie-Kate, 22 yrs for sharing the impact of living with half a functioning heart and how it affects their life.
#lhm #medicalconference
Suzie Hutchinson speaking about the barriers that exist when accessing vital benefits and how, when awarded, they enable young people to live to their full potential. Suzie shared tips with medical professionals on how they can support with applications.
