MetabERN

@Metab_ERN

The European Reference Network for Hereditary Metabolic Diseases. A better future for Rare Inherited Metabolic Disease patients. RT ≠ Endorsement. #Together

Udine, Friuli-Venezia Giulia metab.ern-net.eu Joined November 2017

369 Following 1.5K Followers 1K Posts

Latest posts 5

MetabERN @Metab_ERN Feb 28, 2025

🌍 Today is #RareDiseaseDay 2025!

We stand with the 300 million people worldwide living with rare diseases.
Together, we can raise awareness, drive change, and work toward a more inclusive and equitable future for all!

🔗 Read more: buff.ly/4kiuB9q

#RareDiseaseDay2025

MetabERN @Metab_ERN Jan 21, 2025

🎯 Advance your practice with the ESHG Precision Medicine Hybrid Workshop 2025!

📅 9th–11th April 2025

📍 The Pillar Centre, Mater Hospital, Dublin | Hybrid Event

🎓 Scholarships available! Apply by Jan 26th: buff.ly/3PNzWHy

#Genomics #HealthcareInnovation #ESHG2025

MetabERN @Metab_ERN Dec 12, 2024

🎉 ERICA ERN Research Conference in Udine is off to a great start!

The first day of the meeting focused on showcasing the project's achievements and Work Packages and on its expected legacy for ERNs future!

More at: buff.ly/4gzk3jH

#ERNeu #EU4Health

MetabERN @Metab_ERN Dec 11, 2024

The 4th @ERICA_RD_EU General Assembly & ERN Research Conference kicks off today!

🚀 We're thrilled to welcome representatives from #ERNeu and the #RareDiseases community in beautiful Udine.

ℹ️ erica-rd.eu/about/governan…

MetabERN @Metab_ERN Nov 29, 2024

Board Meeting, day 2: insightful sessions on new IT tools, Joint Actions, and collaborative projects. Finally, a wonderful performance by a Hungarian string quartet.
Special thanks to Istvan Balogh and György Pfliegler for this surprise and their support!
#MetabERN2024 #ERNeu