Cure NF2 Foundation

@NF2BioSolutions

Cure NF2 Foundation is a patient-led nonprofit dedicated to funding research and supporting those affected by NF2-related schwannomatosis

United States curenf2.org Joined August 2018

388 Following 374 Followers 681 Posts

Latest posts 5

Cure NF2 Foundation @NF2BioSolutions Nov 4

Signing up directly with runDisney can be difficult. Register with Cure NF2 Foundation instead, and we’ll make it simple.

✅ April races are open: 5K, 10K, and 10 miles
❌ February and March races: sold out

Sign up here: buff.ly/dSPdG6D

Cure NF2 Foundation @NF2BioSolutions Oct 31

Thank you, Julia! We’re so grateful to all of our runners at Wine & Dine 2026 for running with us.

Want to run or walk with us? Whether you prefer a short race or a long one, we have tickets for you.

Hurry, April spots are going fast! Sign up here: buff.ly/dSPdG6D

Cure NF2 Foundation @NF2BioSolutions Oct 14

We’re excited to share that Donorbox, the platform we use for online giving, now accepts DAF donations. We also accept DAF gifts through PayPal.

Your gift supports gene and cell therapy research for NF2-related schwannomatosis, led by patients determined to find a cure.

Cure NF2 Foundation @NF2BioSolutions Oct 8

Congratulations, Glenn and Dr. Cara O'Neill! The FDA has approved Fayuvi, the first-ever treatment for Sanfilippo syndrome type A. This milestone is also a reminder of what patient-led advocacy and gene therapy can do for rare disease communities, including ours.

Cure NF2 Foundation @NF2BioSolutions Aug 26

What a weekend for the Halloran family! On August 7th, at the NF Symposium in Minneapolis, twins Alanna and Lizzie joined their mom, Danette, on the family panel "Living Between Answers," sharing their journey with families and researchers in the room.