PF Trust

Every Breath Is Precious is aiming to raise £100k to help PFT expand emotional support, support research and provide essential equipment and home adaptations. If you can, please donate today. 🔗bit.ly/EveryBreathisP… #PulmonaryFibrosisTrust #EveryBreathisPrecious

Our first Parliamentary briefing yesterday shared patient evidence, urged updated ILD standards and highlighted research suggesting ILD is more common than thought. Thanks to all who joined us. #PulmonaryFibrosis #RespiratoryHealth @JimShannonMP

1/4

People with pulmonary fibrosis deserve:

✅ Earlier diagnosis
✅ Specialist care
✅ Practical and psychological support
✅ Updated national ILD standards

Tomorrow, we’ll share patient experiences with MPs and policymakers at our first Westminster Briefing.

@CommonsHealth

More than 500 people shared experiences in our pulmonary fibrosis survey, revealing impacts beyond breathing difficulties: mental health, independence and financial wellbeing.

Tomorrow, we’ll take the findings to Westminster. @CommonsHealth

#HiddenInPlainSight #PFAwareness

Tomorrow, we have our first ever Westminster Briefing in Parliament.
Hosted by Jim Shannon MP, we'll be sharing findings from our patient & carer survey ensuring the voices of people affected by pulmonary fibrosis are heard.
@CommonsHealth
#PulmonaryFibrosis #HiddenInPlainSight