Professor Richard Scolyer AO

Not the best day ever..... Today I had another scan of my brain followed by further discussions with the neuro-oncology team who continue their wonderful care. There seems to be further progression of my brain tumour (glioblastoma) affecting brain functioning (as me and a few close friends can feel/see). Whilst it is a bit disappointing, in the big picture it's not the end of the road and I’ve got more to do! I love and enjoy challenges. I certainly haven't stopped yet. Hopefully I can share more special times with family and friends, and continue to advocate for cancer patients.

#cancer #patients #glioblastoma #braincancer
@nthsydhealth
@sydneyLHD @COBLH @Sydney_Uni

I love to spend time with Katie & my three children. My youngest daughter, Lucy, and I often go on walks or to our local dog park with our cavoodle Cha-Cha. He is our first family pet and we got him a few months after I was first diagnosed with my brain tumour. Cha-Cha has been a terrific emotional support for our whole family through thick and thin. He also encourages us to spend more time together outdoors. Our furry friend is a fantastic companion and our family feels very lucky to have Cha-Cha as part of our family!

#love #family #cancer #patients #dog #cavoodle #glioblastoma #braincancer

The recent treatment and testing by Dr Helen Wheeler’s (Neurological Medical Oncologist) wonderful team went well. However, I am a bit anxious about my next brain x-ray testing and treatment & other discussions coming up. It’s just before I’m due to start in the Tour de Cure cycling event in Tasmania! Fingers crossed xxx!

#cancer #patients #glioblastoma #braincancer
@NthSydHealth
@SydneyLHD @COBLH @Sydney_Uni

I was delighted to accept an invitation to speak at a NSW Health event. I talked about my perspective of health and medical care both as a long-term senior staff specialist at Royal Prince Alfred Hospital and also my timing in recent years as a brain tumour patient. I was happy to provide my experience, thoughts and suggestions (I wasn’t in my best shape when delivering that speech- some medical issues- but we had some great discussion at the end). But what was really terrific for me was meeting up with long-term colleagues and supporters over many many years including Teresa Anderson AM, CE of the SDPRIA, Susan Pearce AM, Secretary NSW Health and Deb Willcox AM, CE of SLDH amongst others!!!

#cancer #patients #hospital #glioblastoma #braincancer
@SydneyLHD @NthSydHealth @COBLH @Sydney_Uni

I’m excited (but a little anxious!) about participating in the Tour de Cure (TdC) signature cycling event in Tasmania in March. I’m thrilled that my son Matt, brother Mark and brother-in-law Charlie are all going to participate too, to support this amazing organisation. We are all cycling for four days for approx 150km each day.

TdC are an amazingly committed group of people that have done incredible work over the past 20 years to make a real difference for many cancers and many patients, by raising support for cancer research, treatment and support, as well as advocating and educating. The team of people that work together to pull this off through TdC is incredibly committed.

My initial involvement with TdC was through my research team working together and performing research to improve understanding of cancers and ultimately outcomes. Before I developed cancer myself, I participated in TdC cycling events to teach people more about cancer & help raise funds for research. However, more recently I have participated as a brain cancer patient as well as a cancer researcher.

Importantly cancer research continues stronger than ever and resulted in big impacts! Please consider donating to this important event to continue to push forward.

To donate to this event under the name of the Team Scolyer Fundraising page, please click on the link.

#cancer #patients #love #family #glioblastoma #braincancer
@tourdecure_aus
@SydneyLHD @NthSydHealth @COBLH @Sydney_Uni