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Rare Disease Research UK

@RDRUKHub

We hope to be able to significantly impact the RD research landscape and improve the lives of those directly or indirectly affected by rare diseases.
rd-research.org.uk Joined January 2024
175 Following 242 Followers 203 Posts

Latest posts 5

Rare Disease Research UK @RDRUKHub
📣 Less than 2 weeks left to apply for the Early Career Researcher Award in PPIE!

📅 Deadline: 15 November

👉rd-research.org.uk/uncategorized/…
Rare Disease Research UK @RDRUKHub Sep 23
📢 Applications are now open for this year’s ECR Award in PPIE!

Open to UK-based PhD students and post-docs working in rare disease research, applying with a key PPIE contributor.

📅 Deadline: 15 November 2026
👉 rd-research.org.uk/uncategorized/…

#RareDisease #PPIE #ECR
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Rare Disease Research UK @RDRUKHub
With the UK Rare Diseases Framework ending in January 2027, the report sets out a new vision for rare conditions policy. Read the Future for Rare report published by @GeneticAll_UK 👇

🔗 geneticalliance.org.uk/wp-content/upl…
LifeArc @lifearc1 Oct 22
The Future for Rare report, published today by @GeneticAll_UK, calls for a renewed focus on data, diagnosis, coordinated care, and the appointment of a rare disease lead in each UK country accountable for turning ambition into action.

Read it now 👉geneticalliance.org.uk/future-for-rar…
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Rare Disease Research UK @RDRUKHub
Good research is shaped by the people it is for. If you have worked with public partners to make your rare disease research better, we'd love to hear about it!

Find more info 👇
Rare Disease Research UK @RDRUKHub Sep 23
📢 Applications are now open for this year’s ECR Award in PPIE!

Open to UK-based PhD students and post-docs working in rare disease research, applying with a key PPIE contributor.

📅 Deadline: 15 November 2026
👉 rd-research.org.uk/uncategorized/…

#RareDisease #PPIE #ECR
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