Raiden Science Foundation

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@RaidenScience

Give kids suffering from UBA5 disease a chance to live a healthy life.

raidenscience.org Joined February 2022

113 Following 302 Followers 268 Posts

Latest posts 5

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Raiden Science Foundation @RaidenScience Feb 11, 2025

🎧 Tune in to our podcast episode sharing Raiden's journey. Produced by @UMassChan, Real Diseases, Real Stories highlights families changing the world of rare diseases.

Listen to our episode & more here: umassmed.edu/rarediseasesre…

#RareDiseases #UBA5 #RareDiseasesRealStories

2:20

Raiden Science Foundation @RaidenScience Nov 4

After four years of research, a promising gene therapy for UBA5 disorder is on the horizon. We need to raise $2M to advance toward a first-in-human clinical trial.

Please WATCH, SHARE, and DONATE if you can. You never know who might see Raiden's story. ❤️

raidenscience.org/donate/

5:24

Raiden Science Foundation @RaidenScience Oct 31

🎃 Happy Halloween! No tricks here, just a treat!

We've made some BIG progress this past year, but we also have our BIGGEST challenge ahead. We're sharing an honest look at our progress, what's at stake, and what comes next.

createsend.com/t/y-7F2F6C5D7E…

Raiden Science Foundation @RaidenScience Oct 29

We've completely redesigned our website to better share our story, progress, timeline, and focus on developing a treatment for UBA5 disorder.

More coming soon, including volunteer opportunities and Shop4Rare!

Check it out! 🌐 RaidenScience.org

Raiden Science Foundation @RaidenScience Sep 30

We’re grateful to @thermofisher for supporting the RSF as we advance our UBA5 gene therapy program toward manufacturing. Their support is helping us access a specialized cell platform for our AAV9 production.

Thank you to the Thermo Fisher ❤️