Rare Voices Australia

The 2026 Rare Disease Day video showcases people living with a range of rare diseases from all around the world.

RVA is the national peak body for Australians living with a rare disease. Visit our website to learn more: rarevoices.org.au

Today (28 Feb) is Rare Disease Day! 🌟

Rare Disease Day is the globally coordinated movement for rare diseases, to raise awareness and generate change for the 300 million people worldwide living with a rare disease, their families and carers.

Learn more rarediseaseday.org

To show support for the rare disease community, landmarks around Australia illuminate to mark Rare Disease Day (28 Feb) annually. 🌉

For a detailed list of Australian landmark illuminations, visit rarevoices.org.au/2026-rdd

Researchers from Macquarie University are interested in understanding the challenges young adults face when living with a chronic physical health condition. The research team invites you to participate in a 30-minute survey.

🔗Learn more: redcap.link/0xeaib17

Thanks to everyone who attended the first-ever Rare Disease Disability Network Showcase yesterday (2 Dec) ahead of International Day of People with Disability, which is being marked today (3 Dec)!