"The EHDS is an unprecedented opportunity to structurally include patient voices in forming health services and policy. Why was this opportunity not taken advantage of?" Important point brought up by @robinvankessel at the workshop on the #EHDS proposal, @iHub_RU @LSS_Lab_Leuven
Sphere Transgression Watch
@STW_iHub
A collaborative platform for tracking the rise of Big Tech across all spheres of society. Part of the ERC "Digital Good" project. (PI @TamarSharon, @ihub_ru)
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"Will the increased secondary use of healthcare data not lead to more problems than it will solve?" Another critical question that is brought forward during the #EHDS workshop @iHub_RU and @LSS_Lab_Leuven, Klaus Hoeyer, Irene Schündler
"Who is able to set the standards and who will benefit from the EHDS?" One of the many crucial questions about the #EHDS proposal that urgently need to be addressed! @iHub_RU, @LSS_Lab_Leuven @BPrainsack @Mahsashabani @TamarSharon
Our main concern: “The current proposal will enable easy access of Big Tech to treasure trove of health data. See also 👇 @LSS_Lab_Leuven & @iHub_RU, #EHDS
Before the summer, we wrote a reaction to the proposal for the European Health Data Space (EHDS), which aims to facilitate secondary use of health data. A🧵on the EHDS and sphere transgressions.View quoted post on X
Today the @LSS_Lab_Leuven & @iHub_RU
are hosting an interdisciplinary expert roundtable: Towards the European Health Data Space. #EHDS @mrllcu, @StevensMarthe, @hoyweghen_i, @TamarSharon
are hosting an interdisciplinary expert roundtable: Towards the European Health Data Space. #EHDS @mrllcu, @StevensMarthe, @hoyweghen_i, @TamarSharon