SWAN UK (syndromes without a name)

@SWAN_UK

SWAN UK (syndromes without a name) is run by @GeneticAll_UK, offering support and information to families of children with undiagnosed genetic conditions.

UK undiagnosed.org.uk Joined May 2011

4K Following 8.2K Followers 25K Posts

Latest posts 5

Pinned post

SWAN UK (syndromes without a name) @SWAN_UK Mar 24

FROM 23.03.26, THIS PAGE WILL NO LONGER BE UPDATED Stay up to date by following our other social media accounts Facebook @SWANchildrenUK Instagram @swanchildrenuk

SWAN UK (syndromes without a name) @SWAN_UK Dec 18, 2025

We've created a new leaflet with Rareminds as a practical resource for those who have children with undiagnosed genetic conditions. Find out more and have a read here:
geneticalliance.org.uk/news/new-leafl…

SWAN UK (syndromes without a name) @SWAN_UK Oct 9, 2025

How are genetic conditions diagnosed? Watch our new animation to find out: youtu.be/78XZ-F-ovT0?si…

#undiagnosed #UndiagnosedGeneticCondition #SyndromeWithoutAName #genetic #GeneticCondition #diagnosis

2:32

SWAN UK (syndromes without a name) @SWAN_UK Oct 8, 2025

📢What is a genetic condition? We are excited to launch the first of our three new animations: Please watch and share to help us reach more families.
youtu.be/ZxT61DM90DU?si…

2:00

SWAN UK (syndromes without a name) @SWAN_UK Jul 24, 2025

We're holding a free workshop run by @contactfamilies exclusively for SWAN UK families on supporting parents of children with anxiety. Join us on 2 October 12-2pm. Register: eventbrite.com/e/support-for-…
If you are not yet part of the SWAN UK community join now: docs.google.com/forms/d/e/1FAI…