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Scottish Huntington's Association

@ScottishHD

The only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
Scotland linktr.ee/scottishhuntin… Joined August 2010
413 Following 2.4K Followers 12K Posts

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Scottish Huntington's Association @ScottishHD
The boilerplate response from @GCHSCP that follows
doesn't mention that it failed to consult with service users, the service provider or @NHSGGC #HuntingtonsDisease Clinical Leads prior to recommending scrapping the service. Result: our service was misunderstood & misrepresented.
"Our support is proactive, community based, designed to prevent crisis situations"

@ScottishHD is fighting back after Glasgow City Council announced they'd be ending the charity's contract for specialist support in December.
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