Stargardt's Connected

@StargardtsC

Raising awareness, Giving support, Seeking a cure #Stargardts | Please capitalise each word in hashtags and use image descriptions #Accessible #Inclusive

London, England stargardtsconnected.org.uk Joined July 2018

691 Following 781 Followers 1.6K Posts

Latest posts 5

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Stargardt's Connected @StargardtsC Feb 28, 2023

Today on @rarediseaseday our CE @bhavna_tailor, has received today's @10DowningStreet @RishiSunak's Point Of Light award, recognising her outstanding work to help build a community for all those affected by #Stargardt disease. We are so proud of you! 🎉 👏 pointsoflight.gov.uk/stargardts-con…

Bhavna Tailor standing in front of a window.

Stargardt's Connected @StargardtsC Nov 22, 2024

One day to go before our #Stargardt Day. stargardtsconnected.org.uk/conference-reg…

stargardtsconnected.org.uk Conference Registration - Stargardt's Connected Conference Registration Our 2026 conference will take place on Saturday 21st November from 10.00am - 5.00pm. The venue is 1 America Square, London EC3N 2LB. There is no cost to attend. Light refres...

Stargardt's Connected @StargardtsC Apr 8, 2024

Bhavna Tailor is fundraising for Stargardt's Connected. Please support us so we can continue to raise awareness, support our community and seek a cure for #Stargardt justgiving.com/page/mayors-su…

www.justgiving.com Mayor's Sunglasses Fundraising Walk for Stargardt's Connected Help Someone wonderful raise money to support Stargardt's Connected

Stargardt's Connected @StargardtsC Jan 26, 2024

join the @StargardtsC zoom on Saturday, 3 February at 14.00 GMT (UK Time); 9.00 EST; 22.00 AWST to hear from #EmmyAward winning actress Ellen Gould who has Stargardt and is releasing a film about people with #Stargardt stargardtsconnected.org.uk/event-director…

stargardtsconnected.org.uk Events - Stargardt's Connected Events Forthcoming events are listed below. You can read about our past events here. There are currently no events listed. Please check back soon.

Stargardt's Connected @StargardtsC Nov 27, 2023

Thanks @NSTherapeutics for your STARLIGHT trial for #Stargardt

Nanoscope Therapeutics @NSTherapeutics Nov 20, 2023

Thank you @ModernRetina and Dr. Allen Ho for sharing results from our STARLIGHT trial of MCO-010 for #Stargardtdisease #retina #ophthalmology Visit nanostherapeutics.com for more info
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