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Start Genetic

@StartGenetic

Start Genetic empowers families with medical concerns to START with GENETIC testing. July 25 is Genetic Testing Action Day! #startgenetic
Los Angeles, CA Joined April 2025
11 Following 29 Followers 302 Posts

Latest posts 5

Start Genetic @StartGenetic
November is National Family Caregivers Month!

As we’ve seen with personal genetic testing accounts, caregivers play a key role in advocating for and supporting their loved ones with their health needs. We’re proud to recognize caregivers in their role navigating genetic testing.
Graphic for Phelan McDermid Syndrome Awareness Day which takes place on October 22. Three bullet points with information include: Recognizes family caregivers and the important role they play in our healthcare system, Highlights caregivers’ challenges, honors their commitment and connects them to resources, and Led by Caregiver Action Network since 1997, the 2026 theme is: Care Connects Us.
Start Genetic @StartGenetic
Arturo was one of the youngest people ever diagnosed with MED13. Because of this, he was able to start care sooner than others living with MED13. As MED13 doesn't yet have a cure, early treatment makes a huge difference in helping children with MED13 reach their fullest potential
Graphic for a news story. At the top, a button reads in the news. Below, the headline reads An Early Diagnosis Connects a Family with Life-Changing Care. Description reads Supported by a proactive, engaged care team, a family was able to connect with early treatment and intervention to help their son reach his fullest potential. Source listed is Stanford Medicine Children’s Health Blog.
Start Genetic @StartGenetic
A family’s persistence led to a long-awaited genetic diagnosis and the launch of a foundation.

The Broners’ diagnostic odyssey represents an important aspect of the genetic testing conversation. Some families may face significant hurdles to testing or research studies.

#DNM1L
Graphic for a news story. At the top, a button reads in the news. Below, the headline reads A Family’s Decade-Plus Long Diagnostic Odyssey. Description reads The Broner family faced major hurdles on their journey to genetic diagnosis, highlighting an important aspect of the genetic testing conversation. Source listed is Washington Post.