The Wiedemann-Steiner Syndrome (WSS) Foundation

@WSSFoundation

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS.

wssfoundation.org Joined January 2017

720 Following 244 Followers 297 Posts

Latest posts 5

The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation Sep 15

WSS Community Newsletter- Fall 2026 - mailchi.mp/85256e62b969/w…

The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation Mar 15

WSS Community Newsletter - mailchi.mp/c942abf598bb/w…

The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation Dec 2, 2025

WSS Community Newsletter- Winter 2025 - mailchi.mp/27a2c7eba556/w…

The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation Sep 8, 2025

WSS Community Newsletter- Fall 2025 - mailchi.mp/1bf57b420a3d/w…

The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation Sep 21, 2023

Christina O’Keeffe & Libby Woolford have spent this wk at @_rare.x_ & @globalgenes Week in Rare gathering tools and networking. They were also able to spend time with the Foundation’s newest SAB member, Dr. Maya Chopra, a Clinical Geneticist & Pediatrician at Boston Children’s.