abi halstead

Very excited to announce I've published my book "One Tiny Fault". It explains what #cysticfibrosis is through the story of my life from diagnosis to now, through school, marriage, three children and a cheeky marathon. Link in bio.

@cftrust @CFAware @CF_Foundation

I have had to be my own advocate for phage therapy. Its very unfair that only patients who can shout and do the legwork themselves get it.

Anyone else shocked that MHRA have only had 300 reports pf psych side effects on Kaftrio?

That’s 3% of patients taking it. Feels very low.

@NutriciaHCPUK you blocked my last tweet but I don’t know how else to contact you.

Why are you sending double deliveries and feed when it’s been stopped?

@Nutricia why do you separate out items for different deliveries every month? Are you charging the NHS twice? I managed to send some items back today but normally they won’t take them. I’m not ordering you’re sending. So much waste and a repeat problem for many pts.

@MailOnline