Action for ME

@actionforme

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Bristol actionforme.org.uk Joined April 2009

2.1K Following 12K Followers 17K Posts

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Action for ME @actionforme Sep 16, 2024

1/5

We've updated our 'Manifesto for ME' - now 'Act For ME'

We've sent the updated doc to all MPs, asking them to #ActForME & pledge support for our 3 key calls (see thread below)

We've also created a template letter for you to send to your local MP, asking for their support

An announcement from the organisation "Action for ME" The background features the iconic Big Ben clock tower and the Palace of Westminster in London, with a blue sky. The text reads, "Join us in calling on the Government to ‘Act for ME,’" encouraging action from the government for ME (Myalgic Encephalomyelitis). The announcement includes two buttons labelled "Our news" and "Policy" and features a QR code for further engagement. The overall theme is advocacy for ME/CFS awareness and policy change.

Action for ME @actionforme Nov 15, 2024

🚨 Organisational statement

We have provided a statement on our use of the platform 'X', which is available to read on our website 👇

actionforme.org.uk/news/our-use-o…

#pwME #MECFS #MyalgicE

Quote on peach background: “As a charity supporting people with disabilities, we want to reach a diverse group. We have a responsibility to review the platforms we use to ensure they align with our values and benefit those we support.” Below: “Full statement available on our website.”

Action for ME @actionforme Nov 11, 2024

Thanks so much for all your support @dannyjred

Action for ME @actionforme Nov 6, 2024

🚨 Recording available

The recording from our 2024 AGM is now available 👇

actionforme.org.uk/news/watch-our…

Also available on our YouTube channel 📹

Thank you to all who attended & submitted questions – we really hope the session useful & informative

#pwme #MECFS #MyalgicE

Action for ME @actionforme Nov 6, 2024

We’re delighted to announce @JoPlattLeigh MP as the newest member of our Parliamentary Champions network! 🎉

We’d like to thank Jo for her commitment to support #pwME & #longCovid & we very much look forward to working with her 🤝

Quote from Jo Platt MP on a light pink background. It reads: "I am honoured to become a Parliamentary Champion for Action for ME. My own experience with long Covid and suspected ME has given me a firsthand understanding of the impact post-viral diseases can have on people's lives." The text is aligned left with a line beneath, followed by "Jo Platt MP."

Quote from Jo Platt MP on a light pink background. It reads: "Through my role as an MP, I am committed to raising awareness in Parliament and ensuring that those affected by ME and related long-term, fluctuating conditions receive the recognition, support, and care they deserve." The text is aligned left with a line beneath, followed by "Jo Platt MP."