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Friendly reminder that many members of the #disability community members prefer #IdentityFirst language (e.g. disabled person) over #PersonFirst language (e.g. person with disability). Which to use depends on a few factors. 1/2
Catherine Stratton, MPH
@cathsmstratton
Epidemiology PhD(c) @UofT; @CIHR_IRSC CGS-D & @fdnPETF Scholar; MPH @Yale; VP & Research Chair @moyamoyafdn #KnowledgeTranslation #RareDisease #Pain #Disability
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Latest posts 5
Excited to share the publication of the #SPIRIT/#CONSORT Child & Adolescent Extensions for #ClinicalTrials co-published in @JAMAPediatrics @bmj_latest and @LancetChildAdol
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Excited to share this work which extends the Template for Intervention Description and Replication (TIDieR) to include pediatric-specific considerations: lnkd.in/gzFq_P52
Wonderful leadership @martinoffringa!
#ClinicalTrials #ReportingGuideline #Pediatrics #ChildHealth
lnkd.in LinkedIn This link will take you to a page that’s not on LinkedIn Wonderful leadership @martinoffringa!
#ClinicalTrials #ReportingGuideline #Pediatrics #ChildHealth
📢 New paper alert! The TIDieR-C guideline presents 13 pediatric considerations to support transparent reporting of trial interventions in pediatric trial protocols & reports.View quoted post on X
Paper ➡️ tinyurl.com/ymbves7p
Fillable checklists ➡️ tinyurl.com/56nfj25p
It’s #RareDiseaseDay! With ~1 in 12 affected, RDs represent a significant healthcare burden. The RD diagnostic odyssey is a call for improved RD awareness. The fact that still, only 5% of RDs have a therapy is a sobering reminder of the work we have to do. #RareDiseaseIsNotRare
Most #RareDisease #registries require a confirmed Dx for inclusion. This is important for accurate calc of risks & outcomes, but accuracy is also threatened when people who remain undiagnosed are missed. This can perpetuate inequities:“If someone’s not counted, they don’t count.”