I AM ALS

@iamalsorg

I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.

iamals.org Joined November 2018

718 Following 27K Followers 7.7K Posts

Latest posts 5

Pinned post

I AM ALS @iamalsorg Sep 15, 2025

We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress

0:53

I AM ALS @iamalsorg 55m

Veterans with disabilities, including those living with ALS, deserve VA services they can actually access. 📣 Ask Congress to pass the Veterans Accessibility Advisory Committee Act: bit.ly/VAcommittee (case-sensitive) #EndALS #VeteransDay

0:24

I AM ALS @iamalsorg 4h

Our Tim Lowrey ALS Panel Series hosted its 150th panel this year! 🎉 Bring a virtual panel to your group, class, or organization to learn about ALS from people living with it. Booking into 2027: bit.ly/ALSPanel (case-sensitive)

An individual stands smiling beside a Tim Lowrey ALS project poster. The poster contains text about ALS research and includes sections labeled Background, Methods, Results/Findings, and Conclusions. The person is wearing a dark blazer and light pants, with a patterned carpet visible in the background.

A person seated in a wheelchair is smiling and holding a silhouette of The Incredible Hulk. They are wearing a floral patterned shirt and several colorful wristbands. Other people are visible in the background at what appears to be an indoor event.

At a conference, a person is speaking at a podium on a stage in front of an audience. A large screen displays information about the "Tim Lowrey ALS Panel Series" and includes text about ALS education. The room is filled with attendees listening to the presentation.

I AM ALS @iamalsorg 21h

Thank you, Nicole Cimbura, former co-chair of the I AM ALS Legislative Affairs Team! 💙 She helped pass the original ACT for ALS and created the “lightning in the bottle” behind historic federal ALS research funding. This year’s reauthorization work was built on her foundation.

0:58

I AM ALS @iamalsorg 1d

Veterans: our Veteran I AM ALS Peer Mentors are here to help you navigate ALS, with emotional support, resources, and practical guidance. Sign up to get matched: bit.ly/ALSpeers (case-sensitive) #NationalFamilyCaregiversMonth