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Rare Diseases Clinical Research Network

@rarediseasesnet

NIH-funded network fostering collaborative research among 21 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
United States RareDiseasesNetwork.org Joined October 2011
488 Following 8.6K Followers 2.3K Posts

Latest posts 5

Rare Diseases Clinical Research Network @rarediseasesnet
"For me, the @KTSupportGroup Annual Conference provided me w/the opportunity to be part of a #RareDisease community, to feel the reward that only a career combining #ClinicalCare & #MedicalResearch gives."—Dr. Michael Jeng, principal investigator, ARDVARC rarediseasesnetwork.org/news/consortiu…
www.rarediseasesnetwork.org "An Opportunity to Be Part of a Rare Disease Community": Dr. Michael Jeng on the 2026 K-T Support... Michael R. Jeng, MD, principal investigator of ARDVARC, shares takeaways from the 2026 K-T Support Group Conference.
Rare Diseases Clinical Research Network @rarediseasesnet
We are welcoming eight new research groups to @rarediseasesnet! Each group will bring together scientists, clinicians, patients, families, and patient advocates to study a wide range of #RareDiseases. Read more about the new groups: rarediseasesnetwork.org/news/rdcrn/202…
www.rarediseasesnetwork.org NIH Expands Rare Diseases Clinical Research Network with New Research Groups The RDCRN is welcoming eight new research groups to the network for Cycle 5b.