CORD

@raredisorders

CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare

Toronto, Canada raredisorders.ca Joined September 2013

685 Following 5K Followers 3.6K Posts

Latest posts 5

CORD @raredisorders Oct 13

Canada’s rare disease strategy is working. Now it’s time for Phase 2!

With agreements expiring in March 2027, CORD urges governments to renew $500M in annual federal funding to improve treatment access and care.

🔗 Read CORD’s open letter:raredisorders.ca/uploads/Docume…

#Canada4Rare

CORD @raredisorders Oct 8

Join the INFANT study to screen your baby for 200+ rare, treatable conditions. INFANT is a research study looking at a new kind of newborn screening using DNA to detect more conditions than standard newborn screening.

Learn more 👉 infantstudy.mygeneticsadviser.com/en/access/

CORD @raredisorders Oct 5

IgAN Canada Hub, co-founded by Ruchi Ambike and Dr. Alexandra Cambier, is excited to announce their launch! This nonprofit is aimed at providing support, resources and advocacy to Canadians with IgAN.

For more information visit: igancanada.ca

CORD @raredisorders Oct 2

The @PSPSocietyCDA is hosting its 2026 Family Conference on October 23–24 in Toronto, bringing together people living with PSP, CBD and MSA, their families and care partners, healthcare professionals and researchers.

Learn more and get your tickets:pspsocietycanada.ca/event-details/…

CORD @raredisorders Oct 1

Join us for Webinar 2: When Innovation Rewrites the Pathway on Oct 16!

Registration link: us02web.zoom.us/meeting/regist…

@CFCanada @CureSMACanada