Celine Lewis

@CelineLewis23

Behavioural scientist in rare disease & genomics @ich_ppp | Interest in lived-experience, decision-making & outcomes | NIHR Advanced Fellow @NIHRresearch

London, England iris.ucl.ac.uk/iris/browse/pr… Joined October 2017

195 Following 299 Followers 136 Posts

Latest posts 5

Celine Lewis @CelineLewis23 Mar 27, 2025

Well done @Ria_Patel589 for your award at the @RCPCH conference today presenting our research on #anxiety and #qualityoflife for parents of children with rare undiagnosed conditions. Great to see this work resonate with paediatricians.

@ich_ppp @UCLchildhealth @NIHRresearch

Celine Lewis @CelineLewis23 Mar 13, 2025

New paper on preparedness of community paediatricians for genomic medicine (GM): rdcu.be/edlBt
Whilst viewed positively, variation in uptake exists due to lack of time, resources, skills and not seeing GM as a priority
@ich_ppp @UCLchildhealth @NIHRresearch

Celine Lewis @CelineLewis23 Nov 5, 2024

Well done @Ria_Patel589 for an excellent presentation!

Ria Patel @Ria_Patel589 Nov 5, 2024

Delighted to have presented an oral presentation at #BSGM2024 on parent experiences of whole genome sequencing for paediatric rare disease diagnosis. @CelineLewis23 @ich_ppp @UCLchildhealth
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Celine Lewis @CelineLewis23 Oct 11, 2024

Very pleased to be leading with @MelHill02699279 the evaluation of @GenomicsEngland Generation Study to understand the acceptability and feasibility of genomic newborn screening. Great team involved including @jbuchanan_ox @CeciliaVindrola @GeneticAll_UK @KerryLeeson @ich_ppp

UCL Consultants @UCLConsultants Oct 11, 2024

A @ucl team to assess clinical, social and economic impacts of @GenomicsEngland Generation Study: screening newborns for 200+ genetic conditions.
The study could shape future healthcare practices.
Led by Dr @CelineLewis23 & Dr Melissa Hill (GOSH).
bit.ly/3YmFGgR

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Celine Lewis @CelineLewis23 Apr 25, 2024

To coincide with DNA Day, I was interviewed by the Journal of Genetic Counseling about the experience of parents receiving a 'no finding' result from whole genome sequencing. Listen to episode 3 here: dnadialogues.podbean.com

@NIHRresearch @ich_ppp @JanaGurasashvi @SWAN_UK

dnadialogues.podbean.com DNA Dialogues: Conversations in Genetic Counseling Research | Journal of Genetic Counseling... In DNA Dialogues we dive into the intricate world of genetic counseling research. Join us as we peel back the layers of groundbreaking articles from the Journal of Genetic Counseling, bringing you...