NF Ireland

@NfIreland

At NF Ireland we aim to be a voice for NF patients, carers and their families.
Reg Charity: CHY 6657

info@nfaireland.ie nfaireland.ie Joined May 2013

283 Following 446 Followers 1.7K Posts

Latest posts 5

NF Community Day 2026 - Join the European NF Community 💙💚
NF Patients United is bringing the European NF community together.
📅 Sunday, 15th November 2026
💻 Virtual participation available.
👉 Register via following link: nf-patients.eu/nfcd-2026-virt…

NF Ireland @NfIreland Oct 31

October is Breast Cancer Awareness Month 🌸
💗 Women with NF1 have up to 5 times the risk of developing breast cancer, making awareness, and early detection important.
💗 NF Ireland’s Breast Cancer Self-Check Guide is available through our website: nfaireland.ie.

NF Ireland @NfIreland Oct 14

Have you registered for the NF Ireland Open Day 2026

Join us at Croke Park on Saturday 24 October for clinician talks, personal stories and connection with the NF community.

🕙 10am-4pm | ☕ Registration from 9am | 🅿️ Free parking
🎟️ Register: buytickets.at/theneurofibrom…

NF Ireland @NfIreland Oct 12

October’s NF Magazine is out now
This issue explores breast cancer risk in women with NF1, expert advice & the inspiring story of a breast cancer survivor 💙💚
Read online: nf-patients.eu/magazine/
Thanks to NF Patients United for highlighting this important topic.
@NfPatients

NF Ireland @NfIreland Oct 8

NF Ireland Open Day 2026 - Meet Our Family Support Team
Yvonne O’Donnell - Living with NF1 & family experience
Róisín McConnell - Living with NF1 & sharing personal journey
Áine Byrne - Advice on mental health & our NF Sensory Box
Registration required:
buytickets.at/theneurofibrom…