NF Patients United

It's almost time: the global NF Conference is happening again this year, bringing together the global scientific community from around the world. Come and visit us and our 15 patient organisations at our booth and at the talks & discussions there!
More info on our website!

A big thank you to everyone who took part by sharing videos and following our campaign to learn more about NF. Join us and keep spreading the word about #neurofibromatosis

#StrongerTogether
💚💙 #nfambassadors 🙏🏻

Thanks for sending out info on the NF Academy by @RareRevolutionMagazine - the ambassador training from @NfPatients taking place in Rottedam this summer!

Apply now! There are only few places left at the NF Academy 2024 in #Rotterdam.
The NF Academy is an NF ambassador training for patients or relatives of patients with NF1, NF2-SWN or SWN. Participants should be between 19 and 35 years old.
More info: nf-patients.eu/nf-academy-202…

Even though Neurofibromatosis is not visible, it can cause life-threatening symptoms such as nerve #tumours or benign #cancers. 💚💙 In this video Catherine, from @NfIreland emphasizes the importance for patients to educate themselves about the #disease & #symptoms

#prevention