Pediatric Epilepsy Surgery Alliance

@PESAlliance

Enhancing the lives of children who need neurosurgery to treat medication-resistant epilepsy with research + financial aid + programs before and after surgery.

Los Angeles, CA pesalliance.org Joined July 2012

2.3K Following 1.8K Followers 2.7K Posts

Latest posts 5

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Pediatric Epilepsy Surgery Alliance @PESAlliance Sep 14

Using data from 37 patients in our registry:
📊 85% of children were seizure-free after surgery
💛 86% of caregivers reported improved quality of life
⏳ Over half wished the surgery had happened sooner

John J. Millichap MD @JohnMillichapMD Sep 13

Postoperative outcomes and predictors of functional sequelae following hemispheric surgery in Rasmussen's encephalitis: A retrospective cohort study from the global pediatric epilepsy surgery registry dlvr.it/TVSHhQ #Neurology #Epilepsy
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Pediatric Epilepsy Surgery Alliance @PESAlliance 3d

#EpilepsyAwarenessMonth Faact: When a child starts having seizures, doctors prescribe medication. If two medicines don’t stop the seizures, this is drug-resistant epilepsy.

It’s the moment to ask about a surgical evaluation - not months or years later!

ow.ly/5HQx5104NiB

Pediatric Epilepsy Surgery Alliance @PESAlliance 4d

“Nearly two-thirds of participants achieved at least a 50% reduction in seizure frequency, while 16% achieved complete seizure freedom.”

Practical Neurology Verified account @PracticalNeuro 6d

#Vagus nerve stimulation was associated with sustained seizure reductions in people with drug-resistant #epilepsy in the prospective CORE-VNS study.

At 36 months, median seizure frequency decreased 76%, with fewer seizure-related hospitalizations and ED visits.
ow.ly/5w9T5104K3K
@AmEpilepsySoc @livanova
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Pediatric Epilepsy Surgery Alliance @PESAlliance 4d

“findings support systematic reevaluation of children with seizure recurrence after initial epilepsy surgery, as reoperation can achieve seizure freedom in appropriately selected patient”

Epilepsia @EpilepsiaJourn 4d

In a nationwide study of children with seizure recurrence after epilepsy surgery, 44.3% underwent reoperation, with 40.0% achieving an Engel class I seizure-free outcome. The primary reason for skipping reoperation was a low seizure burden.

doi.org/10.1002/epi.70…

#epilepsy

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Pediatric Epilepsy Surgery Alliance @PESAlliance 4d

“Resections and disconnections, including extensive multilobar and hemispheric procedures, remain the core procedures of pediatric epilepsy surgery”

Neuropediatrics® @PedNeurol 4d

Pediatric Epilepsy Surgery: Global Survey of Surgical Approaches
ovid.com/jnls/neurosurg…
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