Summer Dashe

Please help me make sure the next person who gets #POTS doesn’t have to wait years for that answer. Tag every doctor you know. Retweet this post. Someone out there is suffering and no one can tell that person why. @VUMChealth @VUMC_heart @Dysautonomia wpde.com/news/local/the…

It is incredible to see this company move so quickly and with such purpose. Our first trial is expected to begin mid-2027 with a drug we hope may treat debilitating post exertional malaise in a specific subgroup of #MECFS patients.

What does it look like to be working together at a startup on a mission to find treatments for the conditions we both have? Exactly how you’d imagine.

I still have moments when I cannot believe where life has taken me and how lucky I am to be here with these people doing this thing.

@CortDoesScience and I connected when I was still a news anchor at @wpdeabc15 and she was working at MUSC seven years ago. Both advocates in the chronic illness space tackling the problem from different angles, we stayed in touch, but never actually met in real life until her first work trip out to @ChronicleBioAI HQ a few months ago. She’s a translational scientist and I’m in communications at CB. We work together now!

One time we had a meeting on the floor in the middle of the office because I melted there mid-conversation and she joined me without hesitation. One of our engineers casually plopped down by us too as if it was completely normal and our CEO, @rohit0logy, smiled when he looked out and saw us all productively discussing project plans from the carpet.

Today we started a meeting seated, but eventually I ended up horizontal on the couch and she proceeded to the floor as we continued coordinating participant blood draws, study recruitment content, and other logistics without missing a beat. After a day at the office, we went back to her AirBnB for a few minutes to rest before joining the team for dinner.

There’s no overexplaining needed. There’s no judgement from coworkers about working while lying down or with our legs up on tables and chairs. There’s no questioning a disabled person’s capabilities because their setup looks different. There’s just a really good group of insanely driven humans who care a lot about trying to help us get upright again.

Oh, and there’s the next ChronicleBaby in her belly who we can’t wait to meet! 🫶🍼

#Techbio #POTS #EDS #MECFS #ChronicIllness #ChronicleBio

Such an honor to welcome you to @ChronicleBioAI! Thank you for visiting. There’s truly something powerful about being in the presence of thousands of samples from people like us while standing next to the lab where the research is actively happening.

🩸 + 🧪 = 🫶

When I first went to our lab I immediately asked if I could say hi to the samples. ☺️ They’re our community. I love seeing them safe and sound. It gives me hope and makes me happy. I still wave when I walk by the freezers…every time.