Sam Rhodehamel

Such a meaningful experience at the @chroniclebioai lab, seeing the biobank behind the research!

Every sample in these freezers represents a person, living with these complex chronic illnesses, that needs answers.

Thank you @SummerDashe & team for the warm welcome!

When being sick is enough: aka Long COVID (and related condition) care is abysmal:

Something I’ve wanted to touch on here is how different my experiences have been living with conditions that are treated and viewed very differently by the medical system.

Stumbling across a TikTok by a “sickfluencer” was actually the reason I was able to be properly assessed for and eventually diagnosed with a connective tissue disorder that I'd had for my entire life (hEDS & co.)

Patients shouldn’t have to turn to social media to find answers.

A year ago | was diagnosed with hypermobile Ehlers-Danlos Syndrome after 20 years of symptoms. Patients shouldn't have to wait decades for answers.

My experience isn't unique. hEDS may affect more than 1 in 500 people, yet many patients spend decades searching for answers.

I’m voting for the MAESTRO Health Innovators team in the TOPx Invisible Illness Innovation Challenge! They aim to identify where accessible measurement tools could make the biggest difference for people living with Long COVID, ME, POTS, & related conditions.

Vote below ⬇️