SYNGAP1 Global Network (SGN)

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) @cureSYNGAP1 · Apr 6, 2023

Thank you to the Polanco Family for sharing your story in this wonderful #SYNGAP1 family profile by @rachelwulff @CBSSacramento including Dr. Lee-Messer of @Stanford_Neuro!

Manteca family finds new hope as twin daughters live with rare genetic disorder cbsnews.com/sacramento/new…

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CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) @cureSYNGAP1 · Mar 31, 2023

1Q23 #SYNGAPcensus = 🌏1,215
Details: syngapresearchfund.org/post/142-synga…

🇺🇸343
🇬🇧119
🇩🇪99
🇫🇷95
🇨🇳75
🇳🇱46
🇪🇸39
🇨🇦38
🇦🇺35
🇮🇹33
🇵🇱31
🇧🇷🇷🇺22
🇰🇷21
🇸🇪🇨🇭🇩🇰12
🇧🇪🇳🇴🇦🇷11
🇨🇴10
🇵🇹9
🇮🇪8
🇹🇷7
🇨🇱🇫🇮6
🇮🇱🇸🇮🇲🇽5
🇪🇪🇦🇹🇮🇳🇪🇬4
🇧🇾🇯🇵🇨🇿🇷🇸🇩🇴🇭🇺🇬🇷3
🇭🇰🇷🇴🇸🇷🇲🇦🇺🇦🇲🇾🇧🇦🇸🇰🇸🇬🇦🇪2
🇹🇹🇩🇿🇻🇪🇭🇷🇽🇰🇸🇦🇲🇨🇶🇦🇳🇿🇦🇲1
If we missed you, let us know!

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CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) @cureSYNGAP1 · Jan 19, 2023

#SynGAP families... you can help patients get diagnosed and get #SYNGAP1 prioritized in research!

Our partner @AmbitCare is training an algorithm to help identify patients.

Takes just 10 minutes to respond! syngap.fund/UCSF_survey

We need 150 responses...

#findpatientsnow

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Mike Graglia 🌻 @JMGraglia · Dec 29, 2022

Shoutouts in #s10e85 all about #AES2022 to
@DrZachGrinspan, @AmEpilepsySoc, @CNSdrughunter, @LalDennis, @camp4tx, @rarebasepbc & @cureSYNGAP1.

#SynGAP - Protein
#SYNGAP1 - Gene 🧬
#SYNGAP10 - Podcast 🎙

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