PoTS UK

1/5 Happy 7th 🌟#PoTSAwarenessDay🌟

Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition.

#PoTS is an abnormality of the autonomic nervous system, which controls all bodily functions that we don’t have to think about.
Individuals experience orthostatic intolerance, which means that they mostly experience symptoms when in an upright position.

The majority of people with PoTS also have other related medical conditions such as hypermobile Ehlers-Danlos Syndrome, allergies, Long Covid and ME/CFS- all of which can make symptoms worse.

If you are new here please take the time to view the image thread below to learn some basics about PoTS:

🟣 Symptoms
🟣 Tests/Investigations/Diagnosis
🟣 Treatment- lifestyle changes & medication

View our website to learn more about symptoms: potsuk.org/about-pots/sym…

#MedTwitter #TeamGP #ChronicIllness #LongCovid #InvisibleIllness #MECFS #EDS #MCAS @DrSdeG @elisaperego78 @DrSarahJarvis @mermhart @cpgale3 @LongCovidAdvoc @LC_Physio @MEAssociation

Here is a compilation of all the buildings which lit up in purple for #PoTSAwarenessDay at the end of October 🫶✨

We are so thankful to all those involved who helped us to raise much needed support and awareness of #PoTS potsuk.org

#MedTwitter #Charity #ChronicIllness #Community #Support

Online Peer Support Group - Primarily Bed Based

Living with #PoTS can sometimes mean spending much of your time in bed. It can feel isolating, but you are not alone.

Join our friendly online peer support group for people who are primarily bed-based. It's an opportunity to connect with others who understand, share experiences, exchange tips and support one another.

📆 Monday 9th November
⏰ 7pm
💻 Online

Whether you want to chat, listen or simply feel part of a community, you're very welcome.

👉 Book your free place:
eventbrite.co.uk/e/online-peer-…

💜 You don't have to face PoTS alone.

#LivingWithPoTS #PeerSupport #SupportingEachOther

🗞️ @LongCovidKids have recently launched a new resource:
'Long Covid in Children: A Practical Guide for Healthcare Professionals.'

This is a free resource supporting child-centred care for children and young people with #LongCovid and is available to download on their website:
longcovidkids.org/post/long-covi…

#MECFS #ChildCentredCare

🏃 RUN FOR PoTS UK IN 2027!

We’re excited to announce that we have the opportunity to purchase charity places in two fantastic running events in 2027!

Whether you're an experienced runner or looking for a new challenge, why not take part and help raise vital funds for PoTS UK?

💜 The Great North Run- Sunday 12 September 2027

Join the world’s biggest half marathon, now in its 46th year! Runners from every postcode region across the UK come together for this iconic event, which is also televised live on the BBC.

👉 Register your interest by midday on Thursday 12 November: surveymonkey.com/r/72M8XB7

💜 The Great Scottish Run– Sunday 3 October 2027

Choose between a 10K or Half Marathon and take on Glasgow’s iconic city-centre course. Starting in George Square, the closed-road route takes in the sights of the city, with music stations and cheering points to keep you motivated along the way!

👉 Register your interest by midday on Thursday 12 November:
surveymonkey.com/r/7QGR9N7

A few important things to know:
- Minimum fundraising commitment: £500.
- A £25 non-refundable deposit is required for Great North Run places due to high demand.
- Please only complete the relevant form if you are serious about taking part and are happy to commit to the fundraising target.
Every mile you run and every pound you raise will help PoTS UK continue supporting people living with Postural Tachycardia Syndrome.

Could you or someone you know take on the challenge and run for PoTS UK?

#RunForPoTSUK #RunningForCharity #CharityRunner