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My son Tommy on his communion day yesterday. A picture of health after 7 spinal surgeries. We have world class surgeons and when our kids can access timely health care outcomes can be fantastic.@scolionetwork
michelle long
@chelleylong
Co founder @scolionetwork. Disability Service Manager. passionate friend, wife and mother of 3. Family is everything
552 Following 545 Followers 4.6K Posts
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@ChapCleere the time was given for statements on the utter failings of CHI not to celebrate healthy children in sport. My son couldn't play sport as his lungs were left to be crushed waiting and waiting for surgeries.
@scolionetwork @sp
@scolionetwork @sp
Please request your local TDs and Senators to attend and show their support.
馃摙 AV Room Briefing - Leinster House
This is more than a look back鈥攊t's a call to action for the future of paediatric spina bifida and scoliosis services in Ireland.
We鈥檒l address the past 10 years of challenges but, more importantly, we鈥檒l push for the urgent reforms needed to ensure that no child is left waiting for life-changing care.
馃棑 Date: Wednesday, 25th September 2024
馃晸 Time: 4:00 PM
馃搷 Where: AV Room, Leinster House
Speakers:
馃懁 Amanda Coughlan, Co-lead of Spina Bifida & Hydrocephalus Paediatric Advocacy Group
馃懁 脷na Keightley, Co-lead
馃懁 Claire Cahill, Co-founder of Scoliosis Advocacy Network
馃懁 Michelle Long, Co-founder
Please request your local TDs and Senators to attend and show their support.
#BackUs #TimelyCare #HealthCareRights #ScoliosisCare #SpinaBifida #FutureOfCare @SBH_PAGView quoted post on X
When 19 Millon euros can't be accounted for in any kind of timely manner the question has to be asked who is In charge. We have no confidence in @DonnellyStephen . The question is how can @SimonHarrisTD ??
We met an Taoiseach @LeoVaradkar in Sep '23 where we expressed no confidence in @DonnellyStephen.
9 months later, the situation is even more dire.
We reissue our lack of confidence in Minister Donnelly.
He has proved time and again incapable and incompetent in safeguarding our children. #NoConfidence #BackUs
@SimonHarrisTD @MichealMartinTDView quoted post on X
The ministers position is now untenable in my opinion. CHI allowed to run amok. Putting road blocks in front of families seeking medical records. One would have to wonder why... what they are hiding. @LeoVaradkar what will it take for you to step in...
@benotti69 @CMHaughey It serves to underline both a degree of dysfunctionality and a sickening contempt for patients and their families at their most vulnerable. This is not the behaviour of a government agency with nothing to hide, quite the contrary.View quoted post on X
Step up @DonnellyStephen or step aside.
