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A gentle reminder - “by the end of this year (2017) no child will wait longer for a scoliosis procedure than 4 months”. Aug 2018 and children continue to languish on lists. Do you still feel ashamed @SimonHarrisTD ?
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The Scoliosis Advocacy Network #BackUs
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Founded by @chelleylong @clarcahill - Access to quality & timely #scoliosis assessments & treatments is a children’s rights issue.
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‼️ IMPORTANT UPDATE | AV ROOM BRIEFING RESCHEDULED
Our briefing in Leinster House, originally scheduled for today, 11 November, has been rescheduled to Wednesday, 18 November 2026 at 5pm.
This decision was taken in light of the significant security and travel restrictions associated with Ireland’s hosting of European leaders this week, alongside the separate uncertainty surrounding proposed public sector industrial action.
This is an important briefing, and we are calling on all TDs and Senators to attend.
Families and children affected by failures in scoliosis and spina bifida care deserve answers, accountability and a full, independent Public Statutory Tribunal of Inquiry.
We ask our elected representatives to attend, listen to families and publicly support their call for a transparent investigation.
📍 AV Room, Leinster House
📅 Wednesday, 18 November | 5pm
Hosted by Senator Tom Clonan
#BackUs @TomClonan @SBH_PAG
Our briefing in Leinster House, originally scheduled for today, 11 November, has been rescheduled to Wednesday, 18 November 2026 at 5pm.
This decision was taken in light of the significant security and travel restrictions associated with Ireland’s hosting of European leaders this week, alongside the separate uncertainty surrounding proposed public sector industrial action.
This is an important briefing, and we are calling on all TDs and Senators to attend.
Families and children affected by failures in scoliosis and spina bifida care deserve answers, accountability and a full, independent Public Statutory Tribunal of Inquiry.
We ask our elected representatives to attend, listen to families and publicly support their call for a transparent investigation.
📍 AV Room, Leinster House
📅 Wednesday, 18 November | 5pm
Hosted by Senator Tom Clonan
#BackUs @TomClonan @SBH_PAG
CHI has previously described VBT spinal surgery as involving “experimental technology”.
CHI has failed to answer questions about VBT spinal surgery, charitable funding, any private hospital involvement and patient safety.
Who funded and authorised these procedures? What clinical oversight applied? Where are the long-term outcomes? @CHI_Ireland
CHI raised concerns about the volume of questions.
The Minister for Health must now demand a full, documented account of the funding, approvals, oversight and outcomes. Children deserve answers, not another deflection. @CarrollJennifer @SimonHarrisTD
CHI has failed to answer questions about VBT spinal surgery, charitable funding, any private hospital involvement and patient safety.
Who funded and authorised these procedures? What clinical oversight applied? Where are the long-term outcomes? @CHI_Ireland
CHI raised concerns about the volume of questions.
The Minister for Health must now demand a full, documented account of the funding, approvals, oversight and outcomes. Children deserve answers, not another deflection. @CarrollJennifer @SimonHarrisTD
Something is very wrong with this letter @MichealMartinTD @SimonHarrisTD @AnneOConnorIRL
Signposting parents to a complaints process has become a box-ticking exercise @CarrollJennifer
The @HSELive fully withdraws dietetic services from children with disabilities, with no timeframe for restoration.
Why aren’t clinical risks assessed and the findings and alternative care plans communicated directly to parents?
Why must accountability always be parent-led? @npsoIRL
@KearBeara @SBH_PAG
Signposting parents to a complaints process has become a box-ticking exercise @CarrollJennifer
The @HSELive fully withdraws dietetic services from children with disabilities, with no timeframe for restoration.
Why aren’t clinical risks assessed and the findings and alternative care plans communicated directly to parents?
Why must accountability always be parent-led? @npsoIRL
@KearBeara @SBH_PAG
Son left with 150 degree Scoliosis, almost two year anniversary of his surgery, and trying to rebuild the life, fun, and educational time that has been taken from him. BUT, this is the level of “service” that continues pre and post operative. I have a few letters throughout my son’s life, no service available for you! Keep in mind this is a child that had a #scoliosis curve degree so severe that he had a PEG placed for feeding, renal care, weight gain, etc. @HSELive #staffshortage #spinabifida #scoliosis #backus @CarrollJennifer Here’s my feedback your system is broken and disabled children are suffering!View quoted post on X
@fiannafailparty, @FineGael and independent TDs in Government have sat across from families affected by scoliosis and spina bifida care, heard their experiences and described what happened to their children as disgraceful and unacceptable.
Families have been promised support. Those promises must now translate into action.
The question for those TDs is whether they will bring that same message directly to the Minister for Health @CarrollJennifer, @SimonHarrisTD and @MichealMartinTD, and support families’ calls for a full, open and transparent statutory Tribunal of Inquiry.
11 November | 5pm | Leinster House
#BackUs
Families have been promised support. Those promises must now translate into action.
The question for those TDs is whether they will bring that same message directly to the Minister for Health @CarrollJennifer, @SimonHarrisTD and @MichealMartinTD, and support families’ calls for a full, open and transparent statutory Tribunal of Inquiry.
11 November | 5pm | Leinster House
#BackUs
